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Small boat drifting at sea in sunset, title, "Waiting for a diagnosis"

Waiting For a Diagnosis

According to Prevention.com, it can take autoimmune disease sufferers 5 to 10 years to be diagnosed. Here in the US, there are nearly 24 million autoimmune disease patients, as estimated by the NIH. However, if you’re asking the American Autoimmune Related Diseases Association, Inc., that number jumps to 50 million. In contrast, cancer affects about 9 million, and heart disease 22 million.

There’s no question that the rate of increase for autoimmune diseases is out of control. Once considered a western world problem, it’s now a pandemic crisis. And medicine is nowhere near understanding – much less treating – these complex conditions. Read more…

exercise on lostuponatime.com

It’s good to have goals

I’ve put on a bit of weight this year; I’d say 10 pounds or so. I blame middle-age, several rounds of prednisone, and fatigue that renders me almost bedridden. Thankfully, the prednisone is out of my life (for now), and the fatigue is at bay. However, at some point during my last flare-up, I lost my thigh muscles. I can’t find them anywhere. Mind you, I have plenty, plenty, of thigh. Just no muscle.

With any move I make, I jiggle. Parts I never knew I had are jiggling. It’s a funny feeling. *blink*…Whoa! Did my eyelids just quiver? Read more…

a physician's perspective lostuponatime.com

Chronic Disease From a Physician’s Perspective

I stumbled across this post last week, and haven’t been able to get it off my mind. If you have waited years for diagnosis, or perhaps you know the name of what makes you ill, you will appreciate this letter. Michelle has a fantastic blog- she’s both honest and feisty. I encourage you to take a moment to see what she has to say. But first, read this letter she found. It’s an eye opener.

~m Read more…

It’s like this…

“When someone tells you they have an autoimmune disease, they’re saying their body has all the stability of a 13 year old junior high girl in the throes of puberty.”

I’m in the middle of a flare-up. For the first time in a week, I have the energy to be snarky. And you know, it’s rather satisfying. My joints aren’t too painful to type, at least right now. So, Friends, here I am, sharing my sarcasm. Read more…